My story

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When I was born I was a bit weird when it came to walking and doing the simple things that nearly everyone can do. My family thought that I had somthing wrong with me. From when I was born till I was 4 I couldn't walk properly or I couldn't talk. However when I was four I said my first word. So I found out that I got a speech and language problem. However the walking was still a bit awkward. From when I was 4 years old till I was 14 years old. I thought that I didn't have a physical problem.
In May 2012 I had a phone call home from school saying that they are concern about the way I do things and the way that I walk etc...
On 13th June 2012 I went to my local hospital to have some exercise test things to see what they thought..
Some time between September and December 2012 I was diagnosed with limb gridle muscular dystrophy. This conditon is when the muscles in my limbs and my legs and also my shoulders are weak. So the really simple activities like getting up from bed, getting up from the floor, getting up from a chair, going up and down stairs etc... are the difficult activities for me to face everyday. So since 2012, I have been in and out of loads of hospitals, having loads of tests etc.. But no one is having luck :(. However they not give up until they find s cure.
I think that muscular dystrophy is not a disability, I think that it's conditon but people with this conditon (like me) can still do everyday things but they need more time to do it, people need to give them patience and also give them space.

Sorry if this is boring but it's a story to be told, muscular dystrophy needs more awareness because people don't know what it is.

Thanks for reading.....

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⏰ Last updated: May 02, 2015 ⏰

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