Denying The Odds

Brief history

Denying the odds by Mya Singletary
Written by Cobee keisler

Imagine waking up one day to find that the simple act of standing has become a monumental challenge. Picture yourself, unable to walk long distances, feeling your body protest after just a few minutes on your feet, or struggling to enjoy your favorite foods because swallowing has become an arduous task. For Mya Singletary, a freshman, this daunting reality is not a fleeting nightmare but a constant aspect of her life.

Mya was born with RYR1 disorder, a condition that affects skeletal muscle function due to changes in the RYR1 gene. This disorder has led to persistent muscle weakness and a range of daily challenges that would overwhelm many. However, despite the pain and numerous surgeries that have marked her journey, Mya is so much more than her disability.

As a child, Mya faced the heartbreaking reality of watching her peers engage in activities that she could only dream of participating in. “My condition limited me from doing things that most kids enjoy,” Mya explained. “Jumping rope, running, riding a bike—these activities were just beyond my reach because my muscles were weak, and I struggled to maintain my balance.” The weight of those limitations was heavy, and Mya had to confront not only her physical challenges but also the emotional toll of feeling different.

Every day was a lesson in resilience. Mya’s condition made her muscles feel like they were aging prematurely, a sensation that left her in almost constant discomfort. “My disease is a rare type,” she shared, her voice steady despite the weight of her words. “I hurt everywhere, every day. It feels like my muscles are getting older than they should be, and that’s just part of my reality.”

As the years passed, the physical pain intensified, forcing Mya to adapt once more. Eventually, she found herself relying on a wheelchair for mobility. “I had to start using my wheelchair when the pain became too much to handle. I wasn't in it much during my seventh-grade year, but by eighth grade, I realized I needed it more often,” she recalled.

Despite these limitations, Mya has never allowed herself to be defined solely by her condition. Instead, her experiences have shaped her into a person of remarkable strength and character. “I learned not to let it bother me; I don’t care what others think of me anymore,” Mya said. “I’ve been through so much, but all of it has changed me for the better.”

Coming to terms with her lifelong condition has not been easy. Mya understands that there is little hope for a cure and that she must learn to navigate the challenges it brings. “I will always have this condition,” she acknowledged. “It was heartbreaking to accept, but in the end, I know I’m special. I’ve learned to embrace my reality, even though it was hard and painful. I’ve discovered that I can deal with it.”

Throughout her journey, Mya has leaned heavily on her support system of friends and family. Their unwavering presence has been a source of comfort and strength during both the difficult and triumphant moments of her life. “My friends have been there for me in so many ways, alongside my family,” Mya expressed. “I am incredibly grateful for their support.”

In the face of her challenges, Mya’s spirit shines brightly. She exemplifies the resilience and strength of a young woman who, despite her struggles, has found a way to thrive and inspire those around her.