March 19, 2011 I gave birth to my angel named Dylaney Angelique. All i know, She is SPECIAL BABY. She was on my womb for 9months but even if I'm a 9months pregnant i still look 6months pregnant. That makes me question why.? The Scar on her face was the cord coil, because of that cord in her face, she was not fully developed in my womb. The cord that connects us was so small and thin. For that reason that's why she was not being develop because all the food that I ate was not been transferred for her. She can't see, she HAS NO left eye, she HAS the right eye but still can't see coz still not fully developed and it's blurry. I thought that is only my problem but when she was 5months young I wonder why her head was getting a little bit bigger for her age, that makes me feel unease. At first i can't afford a specialist doctor to know what was her disorder, but 1year and 9months later she gone through MRI Examination for 5hours, inside the MRI room she was pretty good cooperative but I was the one who felt nervous but after the examination it all went well. 1week later we have now the result of the said examination and she was confirmed that she is one of 10,000 babies who has SEPTO-OPTIC DYSPLASIA. Yes, she is special. However it is a disorder of early brain development. Although its signs and symptoms vary, this condition is traditionally defined by three characteristic features: underdevelopment (hypoplasia) of the optic nerve, abnormal formation of structures along the midline of the brain, and pituitary hypoplasia. The doctor says she also has HYDROCEPHALUS, I am so sad to hear that but I'm still thanking God because the one that hydro she has was INACTIVE. It was called hydrocephalus for her for the reason that her brain lacks, instead to have a full developed brain, she has only few and the other portion of her brain were covered by water.. She is very different from other babies who has hydrocephalus, because now her head now maintains its size. And I am so very THANKFUL for that.. And now, she has a maintenance medication but seriously she don't like it. but it's okey.. :) She often sees her doctor Once in Three Months :)) BUT despite of her disorder I'm proud to say that she is HEALTHY, HAPPY, BRAVE and very STRONG. I am blessed. I am so lucky and happy to have a daughter like her. I so love her so much. I love you my baby, my strength, my angel, my EVERYTHING.. You mean the WORLD to me.. ILOVEYOUSOMUCH.. -from MOM
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