Have you ever wondered what it's like to have a rare genetic condition? Or maybe you have rare condition and wants to know what's it's like for other people and how they cope. This is a diary of a sixteen year old girl named Emily who suffers from a rare genetic condition. The only thing that emily wants is to be a normal teenager. Will she ever come to terms with her condition and accept the way she was born? This diary is a roller coaster of feelings that will make you look at life in trough a different perspective. Enjoy xxx