Heartwarrior Stories

To a couple in Texas a beautiful baby girl was born. They named her Hannah. But when Hannah was born she was diagnosed with congenital heart defects. She was diagnosed with Tetralogy of Fallot. Her heart needs help. The first thing the doctors do is put in a shunt. Then at 3 months old she has a surgery to repair these problems. The doctors at Texas Children's Hospital where Hannah is being treated say Hannah needs medication for her whole life, more surgeries is highly likely, constant monitoring, observation stays, and emergency visits to the hospital are all going to happen. The tell them that also there is a chance for heart transplant some where down the road. Hannah's parents are ready to be brave and help Hannah. Hannah will become a heart warrior who will bring much joy and dreams into the world.

When there is no hope there is faith, no matter how much it hurts, how hopeless, how dark there is faith. Chase was born at 40 weeks and 2 days. Everything was normal uncomplicated up until the umbilical cord was cut. After that, all hell broke loose. Expecting my baby to be brought back to me at any moment I instead had to prepare myself to say goodbye. I had barely said hello, how could I say goodbye. Maybe I was being punished, maybe I deserved to be punished. This had to be my fault. When there is no hope you have nothing else left but to look at God and say I have nothing left but to trust you. I chased faith because it was all I had left. Chase was diagnosed with TAPVR 12 hours+ after birth, 12 hours with no oxygen; 12 hours without air in my lungs, 3 days on ECMO being told to love him because 5 mins were all it took never have tomorrow, 3 times I was told to say goodbye. When there is no hope we chased faith.

When I was young a family I was very close to had a son with a heart condition. He passed away before he reached one year old. I wrote this story to help sort through my thoughts and feelings about the event. I hope you all like it.