Raredisease Stories

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this fanfiction is about OkiKagu and some other characters or maybe some of my OCs

The Science of Listening is a series of essays detailing the diagnosis and treatment journey for Ehlers-Danlos syndrome.

Mary Lanis suffer from a rare disease where she ages a lot faster than other people. She was sent to the institution as the scientist will study the disease and produce a cure. She wants to feel what love is so she chases the Chief Scientist to became her pretend Lover. Will he accept it? and will their fake love become true love?

"Hello?" "This is Mission hospital. We found a cure for Arorah' s disease we need her to come in as soon as possible." "Umm..."I ball my fist up while looking at Arorah's lifeless body. "I'm afraid you're too late". I begin to cry and then hang up.

They gave her six months to live. But what if the real danger didn't start until she tried to survive? Alina Reyes has always fought to stay in control-even as her mysterious illness chips away at her strength, her memories, and her future. When a fatal diagnosis leaves her with one last, desperate option, she agrees to join a secretive experimental trial at an isolated mountain facility. The treatment might save her life. But it might also cost her everything else. Inside the high-tech compound, Alina meets Dr. Elias Vance: brilliant, closed-off, and hiding a past that could ruin them both. As the trial begins, strange things start happening-hallucinations, disappearances, encrypted files, and whispers of a darker agenda beneath the surface of the so-called cure. The deeper Alina digs, the more she realizes: This trial isn't just about healing. It's about control. And in a place where your memories can be rewritten... How do you know what's real?

--- Introduction: In the grand halls of the Rhae Manor, whispers of a curse hung heavy in the air. It was said that the men in the Rhae family were bound to a darkness that plagued their very souls-an insatiable need, a sickness that couldn't be cured. A sickness passed down for generations, carried in the veins of each Rhae heir like a secret that could never be spoken aloud. But for their only son, the curse had become unbearable. It was something he couldn't outrun, couldn't hide from, no matter how much he tried to shut out the world. And when his family's desperate attempts to save him ran out, his parents made a choice. They married him off to a girl far too young, far too innocent. A girl who had no say in the matter, her family's poverty sealing her fate. She was the sacrifice. For five years, she was bound to him. Five years to help him, to save him from the sickness that was slowly killing him. A life she never asked for, with a man she never wanted. But the curse had a way of binding hearts, too. Her fear would turn into something else-something dangerous, something that even she couldn't control. And as the years passed, as the possessiveness of her husband grew, she began to realize that this was no longer just about surviving the curse. It was about learning to live within it. To love him, even when he was a monster. And he? He would never let her go. ---

The state of being rare is not rare at all. Hebi, the girl whom deprived of life's most necessity. Water. Thinks everything she was limited to was already ordinary. She thought she already has the peace to live when they fled from all the doctors who took advantage of her condition but their family doctor who spread about her disease had her followed. (On-going)

Hello my name is Saida Luvenia Mahoney I am 25 years old and I live in Oakland California This is a story about my struggles of the diagnosis I have and so much more Diagnosis I have all the way from when I was a baby up to my adulthood I am a Survivor of Self Harm I am a Survivor of Suicide attempts I am a Survivor of Many other things as well This story will also talk about all the challenges I have faced and dealt with and so much more etc. I am writing this story to help bring awareness to become a strong advocate and raise awareness worldwide for the disabled community and those who have rare diseases, chronic medical conditions and mental health disabilities as well and more This story will be pretty long but worth the read I hope you like my story I am writing if you want to learn more about me or contact me my Twitter is @WONDERGIRLSAIDA and @AHERONAMEDSAIDA Thank you so much for reading Much Love, Saida

Hi and Good day everybody! This is my newly created story. I apologize in advance if you notice any incorrect grammar or get confused in some parts of the story. I hope you like it. Heheheh. Rain Walton is a 12th-grade girl who suffers from a rare and unusual disease. If she gets wet in the rain, she becomes weak and could even die. Unfortunately, there is no cure for her condition, which has made her a target for bullies. However, everything changes when she meets Liam Crawford, a boy who loves the rain and will bring joy to Rain's lonely heart.

What I've gone and are going through

[1964 TV Universe] Morticia Addams' beloved husband Gomez has fallen inexplicably ill. Barely saved from his close brush with death, she and the rest of the family must cope with the devastating and disabling results of his illness. As time passes, we check in with his recovery and see how caring for him impacts the family. This story/play was originally written as a project for Rare Disease Day 2018, but was then abandoned. It's now been rejigged a little, and is being put up almost a year late. But hey, Rare Disease 2019 isn't that far away.

Hello everyone my name is saida and in this book I will be talking about how I fought all the big long battle's of my Rare Diseases and my mental health conditions and won the battles to get through everything and made it onto the other side of life and so much more etc

An Iwaizumi Hajime x Oikawa Tooru AU Soulmates. That's one word to describe the relationship between Oikawa and Iwaizumi. Ever since they met in their neighborhood, they're never seen separated. However, Tooru develops a rare condition with no known cure that threatens to change their relationship. What will happen to them?

This is my submission to the #sidehustle contest for Nickelodeon and Wattpad. When a life-threatening disease plages a family member, just how far would you go to help?

A AOT OC

When my son Nilan was eight months old, I heard words no parent is prepared for: "Your child has FOXG1 syndrome." In an instant, the life I had pictured blurred into something unknown - a path with no map, no promises, and no easy answers. But this is not a story of loss. It's a story of love, resilience, and finding joy in places I never thought to look. From sleepless nights to hard-won milestones, from quiet fears to loud celebrations, I share the truth of raising a child with a rare genetic condition - the heartbreaks, the triumphs, and the lessons that shape us. This is our journey, moving forward not in leaps, but in precious, determined steps... one step at a time.

Hello My name is Saida Mahoney I am 24 years old and I live in Oakland California This book is about working hard to make your dreams come true and not giving up I want to help others who are struggling with developmental disabilities, chronic medical conditions, physical disabilities and mental health disabilities Everyone dreams can come true no matter what the circumstances are in life You can do it All you have to do is Believe and Fight Hard Keep your head held up and high!!!