Raredisease Stories

Born with Spinal Muscular Atrophy Type 1, 18-year-old Louis Tomlinson relies on machines and 24/7 care for even the simplest tasks. Once full of stages, lights, and laughter, his world is now defined by blinks, beeps, and the unwavering devotion of Harry, Liam, Niall, and Zayn. This story follows the band as they navigate heartbreak, hope, and the quiet triumphs of caring for someone they love. Through every challenge, every small victory, and every tender moment, they prove that even when life slows down, love never fades.

"Miss. Ryder," said Dr.Yoel, "We sent your blood to the lab and I am very sorry to inform you that we found a problem in your nerve-system causing a rare disease called xxx." "What do you mean Doctor?" I asked, confused "What I mean is that you have a generic disorder causing you to not feel pain-" he continued, "This is because the nerves in your body that are supposed to send the feeling of pain to your brain are not working." ~~~ Blaze Ryder is the girl everyone wants to be; she is sweet, kind, intelligent and beautiful on the inside and out. But when she finds out that she has xxx everything changes and she is determined to find a cure for this disease and nothing, no-one will stand in her way. Alec Royce, bad boy who everyone is afraid to get close to is in the CIA. He is in charge of a very dangerous case that needs someone indestructible, someone who feels no pain. He needs her, she needs him. Both need each in order to make it out alive.

A doctor and a terminally ill patient fall in love. How does the complications of life complicate their relationship?

Switched at birth? More like SICK since birth. My journey from infanthood to now, with many chronic illnesses ✨ #EndChildhoodPain - Christina Published May 2018

--- Introduction: In the grand halls of the Rhae Manor, whispers of a curse hung heavy in the air. It was said that the men in the Rhae family were bound to a darkness that plagued their very souls-an insatiable need, a sickness that couldn't be cured. A sickness passed down for generations, carried in the veins of each Rhae heir like a secret that could never be spoken aloud. But for their only son, the curse had become unbearable. It was something he couldn't outrun, couldn't hide from, no matter how much he tried to shut out the world. And when his family's desperate attempts to save him ran out, his parents made a choice. They married him off to a girl far too young, far too innocent. A girl who had no say in the matter, her family's poverty sealing her fate. She was the sacrifice. For five years, she was bound to him. Five years to help him, to save him from the sickness that was slowly killing him. A life she never asked for, with a man she never wanted. But the curse had a way of binding hearts, too. Her fear would turn into something else-something dangerous, something that even she couldn't control. And as the years passed, as the possessiveness of her husband grew, she began to realize that this was no longer just about surviving the curse. It was about learning to live within it. To love him, even when he was a monster. And he? He would never let her go. ---

A AOT OC

“I don't handle things very well.”

this fanfiction is about OkiKagu and some other characters or maybe some of my OCs

Hello my name is saida mahoney I am 25 years old and in this book I will be talking about everything and taking about my healing and recovery journey as well and so much more I will be talking about how I became a stronger advocate for not only my disabilities but also for my mental health conditions my rare diseases and my medical conditions and so much more etc I will be talking about many other things as well I never want anyone to struggle and feel alone

Random thoughts throughout the day.

She had been drowning constantly even though she can't even touch the water. Sia had been fighting all her life, trying not to be tossed away by the harsh tide. She was born allergic to water. She can't even touch a drop of it nor shed a bit of tears. She enclosed herself in a bubble that only herself can enter. Caleb-- He found peace whenever he is in the water. He can almost literally live in it. However, an accident changed everything. As a gold medalist, world star swimmer, how can he get away from hi most beloved sports now that he can't even get near the pool anymore? What is the future waiting these two individuals; one who long to enjoy water for even a little while the other dreaded water which he once loved the most. Can they make a clearer path in their lives or will they both drown together in the flood that had been brought by their awful past life events?

Death comes to this boring but suspenseful city as several people continuously drop dead like flies. There's only so many people that it could be, but then they die too. So who could be the one taking down this city, along with sustaining the city's reputation? ~~~ UNDER MAJOR EDITING

The Science of Listening is a series of essays detailing the diagnosis and treatment journey for Ehlers-Danlos syndrome.

Since 2012 nothing is like before. An event changed the life of Mia, take her hand and go with her in a world where time has stopped.

Mary Lanis suffer from a rare disease where she ages a lot faster than other people. She was sent to the institution as the scientist will study the disease and produce a cure. She wants to feel what love is so she chases the Chief Scientist to became her pretend Lover. Will he accept it? and will their fake love become true love?

What I've gone and are going through

Jayden and Jayson are twin brothers. They were born miraculously. One of them had a very rare disease, and only can be cured by a hug of his brother. They always got each other's back. One day, they fell in love with the same girl. Will they still love each other and got each other's back or end up with a war between them? Let's find out...

Hello my name is Saida Luvenia Mahoney I am 25 years old and I live in Oakland California This is a story about my struggles of the diagnosis I have and so much more Diagnosis I have all the way from when I was a baby up to my adulthood I am a Survivor of Self Harm I am a Survivor of Suicide attempts I am a Survivor of Many other things as well This story will also talk about all the challenges I have faced and dealt with and so much more etc. I am writing this story to help bring awareness to become a strong advocate and raise awareness worldwide for the disabled community and those who have rare diseases, chronic medical conditions and mental health disabilities as well and more This story will be pretty long but worth the read I hope you like my story I am writing if you want to learn more about me or contact me my Twitter is @WONDERGIRLSAIDA and @AHERONAMEDSAIDA Thank you so much for reading Much Love, Saida

When my son Nilan was eight months old, I heard words no parent is prepared for: "Your child has FOXG1 syndrome." In an instant, the life I had pictured blurred into something unknown - a path with no map, no promises, and no easy answers. But this is not a story of loss. It's a story of love, resilience, and finding joy in places I never thought to look. From sleepless nights to hard-won milestones, from quiet fears to loud celebrations, I share the truth of raising a child with a rare genetic condition - the heartbreaks, the triumphs, and the lessons that shape us. This is our journey, moving forward not in leaps, but in precious, determined steps... one step at a time.

the girl, who wasn't given a tomorrow , named Briar-Rose just wanted to feel one thing. That one thing that was her favourite scent but she was never allowed to because they all wanted to prevent from what happened to her. (Regular updates)