Avascular Necrosis (Osteonecrosis) The Silent Rare Disease: My Story
authorwkp
  • LECTURAS 68
  • Votos 3
  • Partes 1
  • Hora 8m
  • LECTURAS 68
  • Votos 3
  • Partes 1
  • Hora 8m
authorwkp
Continúa, Has publicado sep 26, 2017
asepticavnbloodclotsbloodlossbloodthinnersdisablehematologisthipreplacementlupusnecrosisorthopedicrarebloodclotsrarediseasesicklecellsurgery
In 2014, I was diagnosed with avascular necrosis of the hips. That's when my nightmare began.

What is avascular necrosis?

Avascular necrosis (AVN), also known as osteonecrosis of the femoral head, occurs when the blood supply to the bone is decreased. This interruption in blood supply causes small cracks and breaks in the bone. If the AVN is left untreated, the bone will eventually die and collapse.

Over 20,000 people acquire AVN every year, typically between 20 and 50 years old. It can be caused by a number of factors, such as damage to the bone's blood supply, or injury to the bone itself, which can damage blood vessels and precipitate AVN.
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asepticavnbloodclotsbloodlossbloodthinnersdisablehematologisthipreplacementlupusnecrosisorthopedicrarebloodclotsrarediseasesicklecellsurgery
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My true life story of suffering from a rare autoimmune disease of the liver, its diagnosis, prognosis, treatments, its debilitating impact on my life and how I learned, and am still learning, to cope with it day to day. Hopefully, this'll help someone dealing with something similar, because there is, in my eyes, not much worse than long term pain and long term illness, especially when there's not someone nearby who understands its debilitating nature.

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