One Step at a Time: Raising My Son with FOXG1

When my son Nilan was eight months old, I heard words no parent is prepared for: "Your child has FOXG1 syndrome." In an instant, the life I had pictured blurred into something unknown - a path with no map, no promises, and no easy answers.

But this is not a story of loss. It's a story of love, resilience, and finding joy in places I never thought to look. From sleepless nights to hard-won milestones, from quiet fears to loud celebrations, I share the truth of raising a child with a rare genetic condition - the heartbreaks, the triumphs, and the lessons that shape us.

This is our journey, moving forward not in leaps, but in precious, determined steps... one step at a time.