This is a documentation of me going through a clinical trial for my disease called Spinal Muscular Atrophy (SMA). This trial is going to be a series of visits over the next three months. I will update everyday like a diary. I thought that this might help others like me who look up their own disease as I have and do, to give them some hope that things will get better. My name is Rebel, and this is my story.
6 parts