Dealing with Hughes Syndrome

Hi my name is Dillion Hughes i am 14 and i have hughes syndrome, dealing with hughes syndrome is really hard. First let me tell you what Hughes syndrome is, it is basically a blood clotting problem. This has been hard always dealing with this syndrome, sometimes I wonder to myself"why me,why did god choose me to have this problem. Is it my last name or because I'm a devil child and I'm not supposed to live."