Hi guys i have decided to tell you all about sinocerebella ataxia type 27 and Nrphrotic syndrome first SCAT 27.
i was born with it not much is known all i know me my little sister and brother get it from my dad we are the only four in Australia with this disorder so me my sister and brother have a social worker come out to us every second week.
My Nephrotic syndrome is a whole other story i was in year three when i got this it was the long school holidays before i started year three i was either 6 or 7 i can't remember but my eyes and feet were swelling up may aswell just put the symptoms for you all.
Severe swelling (edema), particularly around your eyes and in your ankles and feetFoamy urine, which may be caused by excess protein in your urineWeight gain due to excess fluid retentionFatigueLoss of appetite
The one i first noticed was my appetite but i have been in remition for 2 years now and hope i never have to go back on the medecation again cause stuff like infections can cause my kidneys to shut down and could kill me.
But anytime i told someone about yhese things no one understood everyone except Kristin Ben Dylan and my Family so yeah and when i talk about this i get dead serious or i just go quiet bye my pizza waffles.
