Anthony245263
Glen, although I seem to have reached a plateau, I have been diagnosed with degenerative Bulbar Palsy that affects my speech and mobility — I am doubtful whether I will see Xmas 2025…
GlenMaddock
I am sorry you are going through that , I’ve allways said it doesn’t matter how bad things are there’s allways worse . I hope they can find a treatment or a palliative the pain information is pretty thin for the condition (general search) though it’s seems to be an ALS condition , no I’m not up with that type of disease / process , there are some experimental drug trials you might be able to access I hope you can
Mnd.gov or clinicaltrials.gov may help or chat with your specialist or Victorian mnd group
I hope you have positive outcomes I’m hoping for you , fingers and toes crossed
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