Slaphappy12

I’ve forgotten how to send a private message, or where I can do that. I was wondering if it was difficult to get your Mito diagnosis.  It was long and difficult for me.  Actually I have muscular dystrophy (adult onset) and Mito.

Slaphappy12

Do you have Mito crashes?   Does your heart pound during a crash?   Like the heart is working overtime 
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heartofcathedrals

You can add me on tumblr under the same name! I went through whole genome sequencing a few years ago. It was hard to get a diagnosis. I’ve lived a long long time with this before it was diagnosed. 
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