101LILYROSE

Hi! 
          
          I also have Narcolepsy w/ Cataplexy and wanted to reach out!
          How do you manage dating with it? I’m never sure about how and when to share that information. Additionally I don’t want to live alone due to the meds I take to sleep. It would be hard to respond to an emergency with it in my system. But I also don’t want to live with just anyone considering the meds I have to take. I don’t know if I’m going to be living in my hometown so my friends may not be an option.
          Do you mind sharing your thoughts and experiences with me?
          
          Sincerely,
          -Ryllee

madikay31

Hi! Sorry this took so long! I shared pretty early on with my now husband. He is very understanding and catches me when I fall down lol. I’m not sure how I would react it seems we are on very different meds. I would just say to be mindful of the people you let into your life and have full trust in a person before you let them know what happens when you are medicated. (I think I was told about that medicine as a last resort option so I get the risks). Just trust yourself and if you do end up living alone maybe look into medical alerts that can be placed discreetly on the outside of the house so only emergency personnel can access it. Not sure if that’s a thing but I hope it is! 
            
            -Madison :)
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