NOTA - The Network of Tyrosinemia Advocates
NOTA (The Network of Tyrosinemia Advocates) is a global nonprofit dedicated to supporting individuals and families affected by Tyrosinemia, a rare genetic disorder. Through education, advocacy, and community-building, NOTA raises awareness, provides essential resources, and promotes early diagnosis and effective care. The organization empowers families by connecting them with medical experts, sharing dietary management strategies, and fostering hope. Join NOTA in creating a stronger, informed community and ensuring no one faces Tyrosinemia alone. Learn more at notacares.org.
https://notacares.org/