Small Steps: The Year I Got Polio

1: The Diagnosis

My ordeal began on Friday early in September. In school that morning, I glanced at the clock often, eager for Homecoming parade at four o'clock. As a seventh grader, it was my first chance to take part IN the Homecoming fun. For a week, my friends and I had spent every spare moment working on the seventh-grade float, and we were sure it would win first prize.

My last class before lunch was chorus. I loved to sing, and we were practicing a song whose lyrics are the inscription on the Statue of Liberty. Usually the words "Give me your tired, your poor..." brought goosebumps to my arms, but on Homecoming day, I was distracted by a twitching muscle in my left thigh. As I sang, a section of my blue shirt popped up and down as if jumping beans lived in my leg.

I pressed my hand against my thigh, trying to make the muscle be still, but it leaped and jerked beneath my fingers. I stretched my leg forward and rotated the ancle.Twitch, twitch. Next I tightened my leg muscle for a few seconds and then relaxed them. Nothing helped.

The bell rang. When I started toward my locker, my legs buckled as if I had nothing but cotton inside my skin.

I collapsed, scattering my books on the floor.

Someone yelled, "Peg fainted!" but I knew I had not fainted because my eyes stayed open and I was conscious. I sat on the floor for a moment while my classmates collected my books.

"Are you alright?" my friend Karen asked as she helped me stand up.

"Yes. I don't know what happened."

"You look pale."

I'm fine," I insisted. "Really."

I put my books in my locker and went home for lunch, as I did everyday.

Two days earlier, I'd gotten a sore throat and headache. Now I also felt weak, and my back hurt. What rotten timing, I though, to get sick on Homecoming day.

Although my legs felt wobbly, I walked the twelve blocks home. I didn't tell my mother about the fall or about my headache and other problems because I knew she would make me stay home. I didn't want to miss that parade.

I was glad to sit down to eat lunch. Maybe, I thought, I should not have stayed up so late the night before. Or maybe I'm just hungry. As soon as I, I won't feel so weak.

When I reached for my glass of milk, my hand shook so hard, I couldn't pick up the glass. I grasped it with both hands; they trembled so badly that milk sloshed over the side.

Mother put her hand on my forehead. "You feel hot," she said. "You're going straight for bed."

It was a relief to lie down. I wondered why my back hurt; I hadn't lift anything heavy. I couldn't imagine why I was so tired, either. I felt as if I had not slept in days.

I fell asleep right away and woke three hours later with a stiff neck. My back hurt even more than it had earlier, and now my legs ached as well. Several times I had painful muscle spasms in my legs and toes. The muscles tightened until my knees bent and my toes curled, and I was unable to straighten my legs and toes until the spasms gradually passed.

I looked at the clock; the Homecoming parade started in fifteen minutes.

"I want to go to the parade," I said.

Mother stuck a thermometer in my mouth, said, "One hundred and two," and called the doctor. The seventh-grade float would have to win first place without me. I went back to sleep.

Dr.Wright came, took my temperature, listened to my breathing, and talked with Mother. Mother sponged my forehead with a cold cloth. I dozed, woke, and slept again.

At midnight, I began to vomit. Mother and Dad helped me to the bathroom; we all assumed I had the flu.

Dr.Wright returned before breakfast the next morning and took my temperature again. "Still one hundred and two," he said. He helped me sit up, with my feet dangling over the side of the bed. He tapped my knees with his rubber mallet; this was supposed to make my legs jerk. They did'nt. They hung limp and unresponsive. I was too woozy from pain and fever to care.

He ran his fingernail across the bottom of my foot, from the heel to the toes. It felt awful, but I couldn't pull my foot away. He did the same thing on the other foot, with the same effect. I wish he would leave me alone so I could sleep.

"I need to do a spinal tap on her," he told my parents. "Can you take her to the hospital right away?"

Dad helped me out of bed. In was too sick to get dressed.

At the hospital, I lay on my side while Dr.Wright inserted a needle into my spinal column and withdrew some fluid. Although it didn't take long, it was painful.

The laboratory analyzed the fluid immediately. When Dr.Wright got the results, he asked my parents to go to the other room. While I dozed again, he told them the diagnosis, and they returned alone to tell me.

Mother held my hand.

"You have polio," Dad said as he stroked my hair back from my forehead. "You will need to go to a special hospital for polio patients, in Minneapolis."

Polio! Panic shot through me, and I began to cry. I had seen Life magazine pictures of polio patients in wheelchairs or wearing heavy iron leg braces. Each year the March of Dimes, which raised money to aid polio patients and fund research, printed a poster featuring a child in in a wheelchair or wearing leg braces or using walking sticks. The posters hung in stores, schools and libraries-frequent reminders of the terrible and lasting effect of polio. Since the epidemics usually happened in warm weather, children were kept away from swimming pools and other crowded public places every summer because their parents want them exposed to the virus.

How could I have polio? I didn't know anyone who had the disease. Where did the virus come from? How did it get in my body?

I didn't want to have polio; I didn't want to leave my family and go hundred miles from home.

As we drove home to pack, I sat slump in the back seat." How long will I have to stay in the hospital?"I asked.

Until your well," Mother said.

I caught the look of dread and uncertainty that passed between my parents. It might be weeks OR months or even years before I came home. It might be never; people sometimes died from polio.

That fear unspoken, settled over us like a blanket, smothering further conversation.

We got home, I was not allowed to leave the car, not even to say good bye to Grandpa, who lived with us or B.J., my dog. We could not take a chance of spreading the deadly virus. Our orders were strict: I must contaminate no one.

Karen called," Mother said when she returned with a suitcase. "The seventh-grade float won second prize." I was too sick and frightened to care.

Grandpa waved at me through the window. Tears glistening on his cheeks. I had never seen my grandfather cry.

Later that morning, I walked into the isolation ward of Sheltering Arms Hospital in Minneapolis and went to bed in a private room. No one was allowed in except the doctors and nurses, and they wore masks. My parents stood outside in the grass, waving bravely and blowing kisses through the window. Exhausted, feverish, and scared, I fell asleep.

When I woke up, I was paralyzed.