FOP progressed so bad she couldnt even chew her food she had a feeding tube Emily and Rozy were healthy
Rozy was 4
Kacey 5 and
Emily 9 i couldnt loose Kacey i wanted her to my life i Need her and Emily too she loved her too much two months later Rozy was healthy and she was fully recovered from opsoclonous myoclonous syndrome that was good news i apoligised Emily because she was raising by her one she told me that everything was ok
Rozy woke up one morning with seizures we went to hospital and she started steroids and gel medicine again
