Chapter 4

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Separating Conjoined Twins

In 1994, Carson and his team went to South Africa to separate the Makwaeba twins. The operation was unsuccessful, as both girls died from complications of the surgery. Carson was devastated, but vowed to press on, as he knew such procedures could be successful. In 1997, Carson and his team went to Zambia in South Central Africa to separate infant boys Luka and Joseph Banda. This operation was especially difficult because the boys were joined at the tops of their heads, facing in opposite directions, making it the first time a surgery of this type had been performed. After a 28-hour operation, that was supported by previously rendered 3-D mapping, both boys survived and neither suffered brain damage.

Over time, Ben Carson's operations began to gain media attention. At first, what people saw was the soft-spoken surgeon explaining complicated procedures in simple terms. But in time, Carson's own story became public—a troubled youth growing up in the inner city to a poor family eventually finding success.

Soon, Carson began traveling to schools, businesses and hospitals across the country telling his story and imparting his philosophy of life. Out of this dedication to education and helping young people, Carson and his wife founded the Carson Scholars Fund in 1994. The foundation grants scholarships to students and promotes reading in the younger grades.

Biggest Medical Challenge

In 2003, Ben Carson faced what was perhaps his biggest challenge: separating adult conjoined twins. Ladan and Laleh Bijani were Iranian women who were joined at the head. For 29 years, they had literally lived together in every conceivable way. Like normal twins, they shared experiences and outlooks, including earning law degrees, but as they got older and developed their own individual aspirations, they knew they could never lead independent lives unless they separated. As they told Carson at one point, "We would rather die than spend another day together."

This type of medical procedure had never been attempted on conjoined adults because of the dangerous outcomes. By this time, Carson had been conducting brain surgery for nearly 20 years and had performed several craniopagus separations. He later stated he tried to talk the two women out of the surgery, but after many discussions with them and consultations with many other doctors and surgeons, he agreed to proceed.

Carson and a team of more than 100 surgeons, specialists and assistants traveled to Singapore in Southeast Asia. On July 6, 2003, Carson and his team began the nearly 52-hour operation. They again relied on a 3-D imaging technique that Carson had utilized to prepare for the Banda twins' operation. The computerized images allowed the medical team to conduct a virtual surgery before the operation. During the procedure, they followed digital reconstructions of the twins' brains.

The surgery revealed more difficulties outside of the girls' ages; their brains not only shared a major vein but had fused together. The separation was completed during the afternoon on July 8. But it was soon apparent that the girls were in deep critical condition.

At 2:30 p.m., Ladan died on the operating table. Her sister Laleh died a short time later. The loss was devastating to all, especially Carson, who stated that the the girls' bravery to pursue the operation had contributed to neurosurgery in ways that would live far beyond them.

Because of his unflagging dedication to children and his many medical breakthroughs, Carson has received a legion of honorary doctorate degrees and accolades, and has sat on the boards of numerous business and education boards.

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