MISDIAGNOSED: Book One

Chapter Five - A Sudden Method

In May of 2022, things had escalated since March. I went to the Radiology of a different hospital and went for tests. I was told not to eat anything for the morning and then went for an Abdominal ultrasound and Abdominal X-Rays to get an idea of what had been going on. Then I was admitted into the hospital because they wanted to see what was going on with my system and where the serious problem was. So the Abdominal Ultrasound was to see if they could see any problems from there but it hurt tremendously. I was extremely bloated at the time so being pressed on all over and held with a metal type of object onto part of the abdominal section just really hurt. I remember it being exceptionally cold because of the air conditioning in the Radiology part of the hospital. Then they took me for Abdominal X-Rays as well to see exactly what the problem could be. Then the next morning, after all the tests and things. I was resting in my hospital room. My mother wasn’t allowed to stay overnight because I was 19 years old already. So I had been trying my best to sleep but it is difficult to do so when they check your blood pressure every 30 minutes or so. Then when my mom arrived, it was breakfast time but I just didn’t feel hungry at all. I just felt so uncomfortable that I just wanted to go back to sleep and not have to eat at all. Then we spoke to a Gastroenterologist who was meant to know exactly what he was talking about because apparently in the last few years, we had only been talking to surgeons and they are only good at finding what needs to be cut open, which is what the majority of the doctors said. So they referred us to a Gastroenterologist because they are specialised in gastro issues. He took one look at the abdominal X-rays and scans and showed that my literal ENTIRE colon was FULL. Which didn’t make sense to me because I would go to the bathroom every day. But the issue was that the bowel was so hard, it had become basically like brick and that’s why I could drink whatever tablets for pain but it wouldn’t go anywhere but back out of my mouth, because my colon was so impacted that digestion had become a joke. He then suggested and prescribed that I take Movicol for a couple months. I had to take 2 sachets a day for a while then 1 and a half, then 1 and then half of a sachet until I finished the amount of time that he allocated to do all of these things then I could stop. But I was still taking Peploc (Which I forgot to mention previously is a good tablet or helping prevent heartburn if your stomach is highly acidic). I had not entirely seen a change since I was taking the Movicol every day cause then there were still days where I had severe spasms and it just made me feel hopeless altogether. I was supposed to eat less oats because that could have caused a lot of heartburn and I was starting to eat more Pronutro porridge because I tried the Taystee Wheat but that also caused heartburn for me at the time. I started opening up to coffee because the Gastroenterologist said that I should start drinking coffee again. But the problem was that I haven’t had coffee in so long that everything I tried was not strong enough. I am still looking for which coffee tastes perfect to me but sometimes all you need is a quick sachet of cappuccino when you have no idea what to make. It took me a long time to become okay with potatoes again and I am still not entirely fine with them yet. Whenever I see fried chips or fried things with too much oil, I associate that with pain because of how much pain it has caused me in the last few years and would rather do whatever I can to live without it. We were told that after all of the Movicol, I should go back to hospital for another test to see if anything has changed for the better. That way it will be a good pathway to being 100% better. I was sceptical because I had been lied to so much in the past. So many doctors have given me their ideas of the diagnosis and it has all been wrong until we found the PCOS route and how that links with IBS. That was the only time I felt right but then something started to feel weird again. I was very upset that they had done blood tests and all I got was more iron tablets. All that did was send me to the Trauma unit (E.R) at the hospital so it felt like it was all for no reason. It felt like I was just being taken for a joke and I couldn’t believe that we had still done nothing about it. There were days where I felt so off cause I felt like my energy was just so low. I eventually just told myself that the only way to get through it is to get through it and that is what kept me going. Something that I could end up eating all the time is wraps. I started craving wraps with mayo and grilled chicken with some spices of course but it was new to me because I never really ate wraps before.

After coming back home, we actually got some chicken wraps for lunch and I felt like things were going to look up eventually. Hoping that we could do another blood test to just silence the panic in my mind but we had to wait a few months before we could go for those blood tests again.