my life...I guess?

Back thing

If you know me, there is a chance that you know that I have spina bifida since birth. It's a disorder where certain bones didn't close fully, leaving some of the spinal cords exposed. That's not good because that's where your nerves are, which are needed to do literally everything. If that didn't function you would die, because your brain can't get any signal through your body. 

Now apparently spina bifida is rare. Out of 4 million births, 1500 to 2000 babies have it. In some cases, including mine, surgery needs to be performed to get rid of a bubble which hangs out of the back. This is risky because, again, spinal cord. If they mess that up, you can say goodbye to using your legs forever. I consider myself lucky because I can still use my legs. My feet are messed up sure, but that's better than sitting in a wheelchair for the rest of my life. I have a slight case of high arch foot, but that's in the family and hallux limitus. At least I think. 

I'm not writing this because I want anyone to feel sorry for me, but I want to get my story out there. I feel like stories like this inspire people, or at least move them. I've been thinking about this a lot lately, because of a thing someone put on Tumblr about their aunt and uncle being in debt because the aunt needed surgery in order for their little baby girl to lead a normal life. It really it home for me because I have the same thing as that little unborn girl, and it can turn out far worse with her.

I've been talking with the person who posted that for a bit, and they said that if they didn't perform the surgery, she would probably die at the age of five. I sorta see myself as the living embodiment of that there is another option, and I hope they're lucky enough that that happens to them.