Symptoms

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The main symptoms of FOP are malformations in the big toe, spontaneous swelling of soft tissue, flare ups after injury, difficulty moving and being more rigid and prone to falling. The misdiagnosis rate of patients with FOP is up to 80%. There is only 800 known cases worldwide, so it is very difficult to get a diagnosis. However, it is crucial that you get a diagnosis as fast as you can so that you can avoid tests that cause flare ups of bone. If you have FOP, there is a 50% chance that your parent has FOP too.

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