Raredisease Stories

Happy rare disease day!!

When William's parents die under mysterious and grotesque circumstances, their lifeless bodies surrounded by vibrant, otherworldly flowers, he is thrust into a world of...

Hello everyone my name is saida and in this book I will be talking about how I fought all the big long battle's of my Rare Diseases and my mental health conditions and w...

Nitisinone is approval for the management and treatment of Hereditary Tyrosinemia Type 1 (HT-1). It is available as a generic drug. Kindly Call/WhatsApp: +91 8130290915...

Hi and Good day everybody! This is my newly created story. I apologize in advance if you notice any incorrect grammar or get confused in some parts of the story. I hope...

Random thoughts throughout the day.

Advocating for newborn screening in WV

Hello everyone my name is Saida and in this book I will be talking about all the things I have proudly overcame and accomplished and so much more etc

Since 2012 nothing is like before. An event changed the life of Mia, take her hand and go with her in a world where time has stopped.

A doctor and a terminally ill patient fall in love. How does the complications of life complicate their relationship?

Hello My name is saida mahoney I am 25 years old and this book is all about myself living with my Congenital Heart Disease and many more things I have learned how to f...

chronic recurrent multifocal osteomyelitis- (CRMO) also sometimes called chronic nonbacterial osteomyelitis (CNO), involves inflammation of the bone. Usually, inflammati...

Hello my name is saida mahoney I am 25 years old and in this book I will be talking about everything and taking about my healing and recovery journey as well and so muc...

Hello My name is Saida Mahoney I am 24 years old and I live in Oakland California This book is about working hard to make your dreams come true and not giving up I wa...

Hello My name is saida mahoney and I am in college I am a performing arts major I do music, dance and theatre and also songwriting. I am from California In this book...

Hello my name is Saida Luvenia Mahoney I am 25 years old and I live in Oakland California This is a story about my struggles of the diagnosis I have and so much more D...

The state of being rare is not rare at all. Hebi, the girl whom deprived of life's most necessity. Water. Thinks everything she was limited to was already ordinary. She...

How would you feel if one day you knew you have a rare disease? Would you choose to get through it alone and push away the one you love? The love you've been waiting fo...

A AOT OC Book

A AOT OC