Switched at birth? More like SICK since birth.
My journey from infanthood to now, with many chronic illnesses ✨
#EndChildhoodPain
- Christina
Published May 2018
^ [ please note, that video is one I made for September 2017, childhood cancer awareness month. ]
Living in a hospital means a few things: 1. You barely get to go outside. 2. The people around you the most are doctors and nurses. 3. The pudding is the best. But the one thing you do not hear of is all the other little patients.. fellow fighters who are even younger than me, dragging their gowns against the floor while holding their IV pole.
I've met so many other little fighters who I got incredibly close to, they are my world. Most of them have gone to heaven, and very few are still here, fighting. Loss is apart of this journey, and it never gets any easier. I'd trade my life in a heartbeat for these kids to be here, so that their families could be complete again. Pictures aren't enough, they should still BE HERE!! I'm so thankful to have met them though, no matter if we're separated on heaven and earth. Losing my friends from school broke my heart, because they were apart of my life for 6 years.
My psychiatrist and pain management doctor told me that I should find a support group online, ( this was right after I received one of my diagnosises ) and so I looked online. There was only ONE foundation barely up and running supporting kids with my condition. It was THAT rare and THAT UNHEARD of. But later on I started to meet people going through my same pain, other kids who have been hospitalized their whole life. I've met only 2 girls with VERY similar stories to mine, but we were all from different places. So the people I could connect most with, were all on the internet. They were all I had to confide to. Like me, they were outcasts in school. Because other kids did not believe that they were sick, and that they were making it up. We bonded over such terrible pain and created such a beautiful friendship. It warms my heart in so many ways🧡🧡 Now, onto my angels: My sweet boy Brooks, love you forever💙
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For Christmas instead of putting the usual angel on the tree, I put MULTIPLE angels on the tree. A few of the kids who have inspired me the most.
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Brooks and Ellie
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Sophia and Kylie👼🏽
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Arisa
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Arisa Ann died from lung cancer at age 6 the day she got her gift from me.. I wish she could've opened it.
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Parker, my beautiful babygirl. My mom always said that you looked like you'd be a model when you grew up. Love you always👼🏽
