After 5 years I was finally approved for a certain testing I asked for when I was 14, it will happen in September. When I first asked for this they said no because I was " too young " but that was a lie. And I cant believe it really took this long to officially happened. I cried at the phone call because I couldn't believe I really waited 5 years for this. The only reason they took so long is because they more than likely expected me to die before they could help me. It's disgusting they expected this. My heart hurts that it's taken so long because by now i have given up hope for feeling better. Maybe if this was 5 years ago then I would've been ecstatic, but now we are too late into the diagnosis. It's too late in my opinion but maybe not to them. It's too late to me because I've gotten so used to living in pain that I have no hope that it will work or help. I lost hope long ago.
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Uncured
DiversosSwitched at birth? More like SICK since birth. My journey from infanthood to now, with many chronic illnesses ✨ #EndChildhoodPain - Christina Published May 2018