Edit: PUBLISHED THIS BEFORE CHAPTER 8 SO THE UPDATE (17 oct 2020) IS THE CHAPTER BEFORE THIS
Hey guys, so as you know I have dyslexia, very low concentration time and motivation but very little motivation to actually act upon my thoughts.
Well for the past 3 years, (since I was about 12/13) I have always been very very tired, I would fall asleep during classes, fall asleep doing things, constantly sleep basically.
I have had terrible sleep drunkness, brain fog, feeling faint and sick straight after waking up, excessively sweat, trouble with body temperature, raynauds (search it up if you're not sure what it is x), EDS (excessive daytime sleeping), never feeling refreshed after naps or sleep, having the strong urge to go straight back to sleep after waking up and headaches
My parents passed me off as being lazy, my dad was so nasty towards me because of it.
It turns out all my issues were not a coincidence and were symptoms
A couple days ago, my dad did some research into my sleeping habits and other issues.
He found documents about a syndrome called 'Idiopathic Hypersomnia' it is a rare(ish) chronic illness that effects your sleep and other things.
I have every single symptom. Every single thing I have struggled with for years now, is a symptom EVERY SINGLE THING.
My dad is looking for specialists (as he was a doctor and wants me to get the best treatment), once I am officially diagnosed I will go into get medication that can help with certain symptoms (as there is no known treatments)
This is chronic neurological disorder and something I will deal with for the rest of my life and in some cases can be debilitating. I pray that I will not get that bad and can get effective medications.
But I'm over the moon,
It isn't my fault.
It isn't me.
There is something physically stopping me from doing things.
My dad and mum are SO apologetic and are so upset and annoyed at themselves for not researching sooner (especially my dad as his was a surgeon/doctor)
So bear with me guys, the reason I don't update as fast as I would like is I genuinely do get too tired. And by the time I've done the things I NEED to do like music practice, hmk, done school. I am so incredibly tired.
But as soon as corona has gone and I get medication I should be a lot better.
THANK YOU GUYS XXXX
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