I must be honest. I was scared as f. when Dr. Frankovich told me that it would take 5 years to get completely back to normal. I had already lost 2, and now it would take me 5 more? I also had to start taking antibiotics on a daily basis to avoid getting to strep again of course, I also had to take a bunch of other stuff. From one day to another my 2 daily pills turned into 30. I can tell you my pill box was about to explode. My record of swallowing pills at a time was at 17. And the fish oil. Oh shit that thing is the grossest thing on earth, its like a pill bigger than my thumb (im not kidding) filled with oil from a fish's liver. Are you still hungry?
The same day I was diagnosed I was hospitalized to get an IVIG transfusion, the only "medical" thing apart from taking antibiotics that can actually help a PANS patient. Let me explain to you what an IVIG is. Its the "healthy normal" antibodies that I lack, extracted from the blood plasma of 5000 to 7000 blood donors. So thanks for donating blood everybody, you just saved my life.
Anyways, it hurts. Like a lot. You have an IV in your hand for over 24h and your hand is all swollen after. But that's not the worst part. The side effects include migraines and nausea, some people barely have any side effects, but I'm not like that, I have the worst side effects for over a week.
But lets not focus on the negative. Just barely a week after I was back to my normal self from before all this had happened. It was amazing, I was finally able to see clear from this dark cloud of depression and this blur that had become my life. That was when I found hope again, I was gonna get through this no matter how hard it would be.
And it was gonna be hard, because after 3 months the IVIG's start losing effect. After that I've had 2 more and counting.
YOU ARE READING
A lot can happen in a year, but I never expected this.
Non-FictionPANS stands for Pediatric Acute Autoimmune Syndrome, the disease i was diagnosed with in April 2014 after a year of not knowing what was wrong. Researchers are only beginning to study and understand this syndrome, and therefore there are a lot of un...