Chapter 44

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When I have turned 21 years old I went to my doctor appointment I had scheduled and at the that time and moment I wanted to become a advocate for my health and my healthcare

I no longer wanted to depend on others to do it for me because I was determined to do the same exact things and then do extra

I wanted to learn every single thing about all of my developmental disabilities and my medical conditions and my mental health disabilities

I want to get educated on my genetic disease and know how to get myself best resources to help those who are diagnosed with rare diseases and later on I was diagnosed with my second rare disease HS I once again continued to get myself educated so I can become a stronger advocate for myself

I wanted to give myself the best help and support

I was determined to do everything

When I turned 23 I was a stronger and knowledgeable advocate for everything that I deal with and all my diagnosis and my treatment plans

By the time I turned 25 years everything was so much better for me and I couldn't ask for anything better

My medical team is truly amazing

I have became a stronger advocate for my rare diseases and all of my other conditions

I have not only been a advocate for myself I was a advocate for all everywhere

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