You know when you look ahead sometimes, you can see how something is about to play out or "go down?" Ahh yes, it happened for sure. I don't know who in their right mind thinks it's ok to place a chest port in a teen's chest and then not even 4 hours after, flood it with bag after bag of chemo med and hope that things are ok? Absolutely & definitely not. I am here to tell you that it's not a great idea. Let's dive into why I say avoid this at all costs. After running seven or eight intravenous bags of liquid on a new port, that is alot of pressure. Things can move and shift. That is exactly what happened to my Bean. I am so upset that she now is having a third surgery in twenty-eight days. Less then a month. If anyone had asked me if this was ok or allowed I would have said no. I feel as though my child unnecessarily needs to be afraid again of having surgery. I cannot help but feel this should have been done right the first time. This includes port placement and chemo. Chemo is always a rush rush situation around the employee work schedules. First, second, and third shifts. Let us not forget you need a chemotherapy nurse. This person administers the treatment start to finish in a very specific order. With all of this I would have told you it wasn't ideal. I am stuck in my feelings of anger and fear. Angry because this could have likely been prevented, and fear of the unknown. I hate the idea of surgery with my kids, period. Bean's last surgery went seven minutes over. I stared at the monitor with numbers fearfully wondering why her time in operating room went over. A mother's intuition is always right. I knew something was wrong. My baby came out of surgery with multiple incision sites because the surgeon struggled with port placement. This was because my child's vein had been distorted, and it made placing the catheter very challenging. So, I feel as though this has to work and he will make it right. I have faith in the surgeon. The difference this time is my child will not be having chemotherapy administered directly after. As a mom, I believe that will be the positive difference this time. If you had asked me, I would have told you so.
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Nobody asked me but.. Cancer
Non-FictionThe roadmap journey of a Mom who learned her teen has cancer on accident.